FROM THE BEGINNING...
THE NEVADA CLINIC
In preparation for out trip we had a few more labs run to look at her thyroid. We spent 2 days at the clinic where they ran stress tests on her body in a couple of different ways, Vitamin/Mineral IV (vitamin C, vitamin B, magnesium), multiple homeopathic remedies, they stared her on thyroid medication and adrenal support, Iodine, and Selenium. After the second day Whitney did notice a small improvement in her ability to walk a little more normal. We left the clinic with great hope as according to their tests she had an Un-diagnosed Neurological Condition that is aggravated by a possible radiation (radon) and pesticide poisoning. We were urged to have our basement tested for radon gas and look into any pesticide/herbicide that was used by the previous tenant (we are in a rental and it is ran by a property management company). In the midst of investigating into those things further, they gave Whitney slew of homeopathic remedies to help with the detoxing of those substances. Dr Olsen also thought it important for us to eat a healthy diet and take proper supplements to help support her immune system, brain and nervous system, and support her intestinal track. We mention that we just started her on juicing again, and he was very pleased to hear that as that can be a very potent way to get the proper nutrients to support the body.They also said that getting weekly (at least) vitamin C IV's would be very wise. We left Vegas feeling hopeful.
Since being home we have had out basement tested for radon and the results came back at 1.7 pCi/L, which the national average is 1.4 pCi/L and anything over 4.0 pCi/L is considered dangerous. Getting those results back was a blessing. After ruling this out we decided to go to another doctor in the area and get more tests done to further investigate Lymes disease and possible pesticide/herbicide poisoning.
CANYON VIEW MEDICAL (FAMILY PRACTICE)
We found a new family physician in the area near our home. On Tuesday 6/8/15, we met Dr David Beckstead MD to get another head in on our situation. He agreed to run some more specific tests for Lymes disease but he also wants us to get a nerve conduction test. We are being sent out to another Neurologists to get this done. This procedure basically entails getting acupuncture like needles into your limbs along the paths of the nerves to test how the nerve is conducting the signal throughout the body, This will allow them to see at what point throughout the limb or spinal level is not conducting the impulse. This test will be done 6/12/15.
UTAH VALLEY HEALTH CENTER
We were led to this clinic as Dr Jeffery Wright ND (Naturopathic Doctor) is known in the area for working with Lyme disease patients. We recently visited with Dr Wright and shared with him everything we've gone through in the past month or so. After performing his exam he is very suspicious of possible Lyme's disease, and if not Lyme itself, possible co-infections carried from the same tick that often are seen together with Lyme's such as: Babesia, Bartonella, Ehrlichia, and Anaplasma. Often times when the bodies immune system begins to attack those bacteria, the bacteria release biotoxins to protect themselves from being destroyed. We told him that we are still waiting for some specific Lyme's blood tests to come back but that we should hear back in a few days. In the mean time he thought it wise to continue with the Vitamin/Mineral IV's similar to what cancer patients use to help rebuild their immune systems during chemotherapy. The combination consists of high doses of vitamin C (25,000 mg), a mix of vitamin B, and magnesium. A few days prior to going to see Dr Wright, Whitney noticed that her right hand began to tremor uncontrollably, which could be a sign of the bacteria causing more damage. At the beginning of the visit her hand was shaking the worse it ever has been. By the end of the IV, her hand had calmed down significantly. We were also advised by Dr Wright to support Whitney's immune system, brain and nervous system, and her intestines. Doing this will help change the environment that the bacteria live in, making it harder for the bacteria to survive.
SUMMARY
After seeing a total of 9 medical doctors (2 of which are family that we consulted with long distance, and 2 Neurologists), 1 Naturopathic Physician, 2 Chiropractors, 2 Homeopathic Practitioners, 2 MRI's, a lumbar puncture, and a slew of blood tests, we still do not have a firm diagnosis and the symptoms seem to only be getting worse. We're hopeful that the vitamin IV's will continue to help as we stay consistent with them weekly and stick to a strict dietary protocol to help support her body so that the bacteria won't have an environment within her body to survive. Whitney is still struggling with walking as her right leg is weak and has lost a lot of muscle. Her right arm is along the same line just not as bad. We are hopeful that with the tests that we still have out, something will come of it all and we'll be able to make some sense of all of this. Until then, as we continue the journey, all we have control over is our own attitude. We'll continue to look forward, with our heads held high, grateful for the days that we still have together as a family.
THANK YOU
So many have already sent help either monetarily, physically around the house and with kids, and prayers. We've been overwhelmed by the outpouring of love by so many. Thank you so much!!
If you would like to donate in helping us continue with Whitney's treatments to get her health back, you can do it one of 2 ways:
1) Go fund me http://www.gofundme.com/wgxdv9h
2) If you have a Google Wallet account you can send it directly my account using my email brian.massimini@gmail.com
Since being home we have had out basement tested for radon and the results came back at 1.7 pCi/L, which the national average is 1.4 pCi/L and anything over 4.0 pCi/L is considered dangerous. Getting those results back was a blessing. After ruling this out we decided to go to another doctor in the area and get more tests done to further investigate Lymes disease and possible pesticide/herbicide poisoning.
CANYON VIEW MEDICAL (FAMILY PRACTICE)
We found a new family physician in the area near our home. On Tuesday 6/8/15, we met Dr David Beckstead MD to get another head in on our situation. He agreed to run some more specific tests for Lymes disease but he also wants us to get a nerve conduction test. We are being sent out to another Neurologists to get this done. This procedure basically entails getting acupuncture like needles into your limbs along the paths of the nerves to test how the nerve is conducting the signal throughout the body, This will allow them to see at what point throughout the limb or spinal level is not conducting the impulse. This test will be done 6/12/15.
UTAH VALLEY HEALTH CENTER
We were led to this clinic as Dr Jeffery Wright ND (Naturopathic Doctor) is known in the area for working with Lyme disease patients. We recently visited with Dr Wright and shared with him everything we've gone through in the past month or so. After performing his exam he is very suspicious of possible Lyme's disease, and if not Lyme itself, possible co-infections carried from the same tick that often are seen together with Lyme's such as: Babesia, Bartonella, Ehrlichia, and Anaplasma. Often times when the bodies immune system begins to attack those bacteria, the bacteria release biotoxins to protect themselves from being destroyed. We told him that we are still waiting for some specific Lyme's blood tests to come back but that we should hear back in a few days. In the mean time he thought it wise to continue with the Vitamin/Mineral IV's similar to what cancer patients use to help rebuild their immune systems during chemotherapy. The combination consists of high doses of vitamin C (25,000 mg), a mix of vitamin B, and magnesium. A few days prior to going to see Dr Wright, Whitney noticed that her right hand began to tremor uncontrollably, which could be a sign of the bacteria causing more damage. At the beginning of the visit her hand was shaking the worse it ever has been. By the end of the IV, her hand had calmed down significantly. We were also advised by Dr Wright to support Whitney's immune system, brain and nervous system, and her intestines. Doing this will help change the environment that the bacteria live in, making it harder for the bacteria to survive.
SUMMARY
After seeing a total of 9 medical doctors (2 of which are family that we consulted with long distance, and 2 Neurologists), 1 Naturopathic Physician, 2 Chiropractors, 2 Homeopathic Practitioners, 2 MRI's, a lumbar puncture, and a slew of blood tests, we still do not have a firm diagnosis and the symptoms seem to only be getting worse. We're hopeful that the vitamin IV's will continue to help as we stay consistent with them weekly and stick to a strict dietary protocol to help support her body so that the bacteria won't have an environment within her body to survive. Whitney is still struggling with walking as her right leg is weak and has lost a lot of muscle. Her right arm is along the same line just not as bad. We are hopeful that with the tests that we still have out, something will come of it all and we'll be able to make some sense of all of this. Until then, as we continue the journey, all we have control over is our own attitude. We'll continue to look forward, with our heads held high, grateful for the days that we still have together as a family.
THANK YOU
So many have already sent help either monetarily, physically around the house and with kids, and prayers. We've been overwhelmed by the outpouring of love by so many. Thank you so much!!
If you would like to donate in helping us continue with Whitney's treatments to get her health back, you can do it one of 2 ways:
1) Go fund me http://www.gofundme.com/wgxdv9h
2) If you have a Google Wallet account you can send it directly my account using my email brian.massimini@gmail.com
 |
| Whitney at the Sams Town Hotel in Las Vegas |
Also a recent video of what Whitney's tremors look like has been uploaded to the facebook page dedicated to Whitney's Health Journey https://www.facebook.com/pages/Whitneys-Health-Journey/1594922644118410
Thank you for the update! Not too long ago I was doing this same thing with updates and I know it can be hard to find the time or energy for it, but I see on the other side it is so appreciated! I hope you guys hear some answers soon from the tests! Keep up the good work!
ReplyDelete